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email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

What is Alpha-1 Antitrypsin Deficiency?

Alpha-1 Antitrypsin Deficiency also known as Alpha-1, A1AD or AATD is an inherited, genetic condition that is passed on from generation to generation. As the name suggests it is a deficiency of alpha-1 antitrypsin (AAT) in the bloodstream. AAT is an enzyme produced in the liver to help protect the tissues of the body during infections. The low level of AAT in the blood occurs because the AAT is abnormal and cannot be released from the liver at the normal rate. This leads to a build up of abnormal AAT in the liver that can cause liver disease and a decrease of AAT in the blood that can lead to lung disease.

Newsletter Autumn 2019 Now Available


Autumn 2019 Alpha-1 UK Newsletter Issue 18
Now Available

Contains 28 pages full of News and Information including:

Charity Annual Update, Members Stories and much more

 

Top Story

Our Committee Member, Lindsay Jarrett visits Mereo Biopharma to highlight Alpha-1 community needs

26th November 2019

 

On 26 November 2019, Lindsay Jarrett, Committee Member of Alpha-1 UK Support Group, visited Mereo Biopharma at their offices in London.  Following the Alpha-1 UK Support Group's Annual Social Gathering & Information Day on 14 September 2019 in Daventry, the Mereo team wanted to understand the true impact that Alpha-1 has in real life; and what it means in reality for people who are progressing rapidly along to serious lung disease at young age.

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Latest News

Lindsay Jarrett Visits Mereo
26 Nov 2019 12:00Lindsay Jarrett Visits Mereo


Our Committee Member, Lindsay Jarrett visits Mereo Biopharma to highlight Alpha-1 community needs
26th November 2019   On 26 November 2019, Lind [ ... ]

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World COPD Day 2019 (2)
20 Nov 2019 12:00World COPD Day 2019 (2)


Chronic Obstructive Pulmonary Disease (COPD) Day 20th November 2019   COPD is a disease that affects a large number of people in the UK. COPD ha [ ... ]

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Mereo Alvelestat Study Update
14 Jun 2019 12:00


UK sites now open for new drug trial (Astraeus Study) to explore oral compound for Alpha-1 lung disease   8 clinical trial sites now open across  [ ... ]

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Sandra Takeda Keynote
11 Jun 2019 12:00


Alpha-1 UK Support Group would like to congratulate our Trustee, Sandra Nestler-Parr, who today has delivered the keynote opening presentation at Ta [ ... ]

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