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email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

Helpful Websites

Alpha Facts    
     
Patient UK Comprehensive health information as provided by GPs and nurses to patients during consultations. UK
     
WebMD Leading source for trustworthy and timely health and medical news and information. US
     
Related Organisations
   
     
British Liver Trust  The British Liver Trust is the national charity working to reduce the impact of liver disease in the UK through support, information and research. UK
     
British Lung Foundation The British Lung Foundation is the only UK charity working for everyone affected by lung disease. We focus our resources on providing support for people affected by lung disease today; and work in a variety of ways, including funding world-class research, to bring about positive change, to improve treatment, care and support for people affected by lung disease now and in the future. UK
     
British Thoracic Society The British Thoracic Society is a registered charity who's objective is to improve the standards of care of people who have respiratory diseases. UK
     
Children's Liver Disease Foundation National charity based in Birmingham who for nearly 30 years have been fighting childhood liver disease. UK
     
Children's Liver Disease Foundation -Focus National charity based in Birmingham who for nearly 30 years have been fighting childhood liver disease. UK
     
Second Wind Second Wind Lung Transplant Association, Inc. was formed on April 17, 1995, by a small group of people who wanted to provide information about lung transplantation to others. US
     
Support Groups    
     
Alpha-1 Association A member-based not-for-profit organization dedicated to identifying those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research. US
     
Alpha-1 Association of Australia An organisation dedicated to the help and support of Australians who are affected by and interested in Alpha-1 Antitrypsin Deficiency (A1AD) AU
     
Alpha-1 Canada An organisation who's mission is to provide information, education and support to Canadians affected by alpha-1 antitrypsin deficiency. CA
     
Alpha-1 Foundation Dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency. US
     
EFFORTS A nonprofit organisation dedicated to the support of individuals who suffer with Emphysema, a Chronic Obstructive Pulmonary Disease (COPD). US
     
More Information    
     
Councelling Directory Councelling Directory is a confidential service that encourages those in distress to seek help. The directory contains information on many different types of distress, as well as articles, news, and events. To ensure the professionalism of our website, all counsellors have provided us with qualifications and insurance cover or proof of membership with a professional body. UK
     
EFA

The European Federation of Allergy and Airways Diseases Patients Associations (EFA) is a European network of allergy, asthma and COPD patient organizations that was founded in 1991 in Stockholm, Sweden.


BE
     
Mesothelioma Pleural mesothelioma is by far the most prevalent form of mesothelioma. According to the American Cancer Society, three-quarters of all mesothelioma cases are pleural. Pleuralmesothelioma.com offers the most comprehensive and current information on Mesothelioma Life Expectancy, asbestos exposure, and mesothelioma. US
     
Mesothelioma

Mesothelioma is a cancer of the lining of the lung and is caused by exposure to asbestos. At some point, nearly everyone has been exposed to asbestos. Because of the lengthy latent periods, mesothelioma and other asbestos-related diseases can remain undetected for over a decade before the patient shows any signs of illness. Someone can be diagnosed with mesothelioma many years after their exposure. For more information on asbestos and mesothelioma, please visit Mesothelioma Web.

US
     
Mesothelioma Symptoms The mesothelioma symptoms site covers an extensive range of topics from the different types of mesothelioma, to the different methods of treatment. US
     
     
Pleural Mesothelioma

Pleural Mesothelioma is a form of cancer in the pleura (protective lining of the lung). It is caused by exposure to asbestos fibers.

US
     
Rare Disease UK An alliance of key stakeholders brought together to develop strategic planning for rare diseases in the UK. UK
     
Medical Products    
     
Pari Medical Ltd PARI has been manufacturing nebuliser systems for more than 100 years, developing solutions for people suffering from respiratory diseases in the form of high-quality, reliable devices. PARI represents the ‘Gold Standard’ in inhalation therapy, based on solid evidence.  PARI’s range of fast and efficient products is specifically designed for patients with chronic lung conditions such as COPD.  Quote ‘Alpha One’ when ordering to receive a 10% discount on any PARI nebuliser system.  UK
     
Smile Rehab Ltd Smile Rehab Ltd is one of the UK 's leading specialists in the manufacture and supply of mobility, communication and respiratory devices for children and adults with special needs. See their TopTips for travelling with a Portable Oxygen Concentrator  UK




Disclaimer

The websites referenced or linked from the Alpha-1 UK Support Group website are for information purposes only and are not under the control of Alpha-1 UK Support Group. The Alpha-1 UK Support Group is not liable for the content of any of the external internet sites listed, and does not endorse any commercial product or service mentioned or recommended on any of the sites. Treatment and therapies vary worldwide and some may not be licensed for use in your country. Please note that not all information or advice may be suitable for you, always consult with your Doctor if you are in any way concerned with your health.



















 

Pleural MesotheliomaPARI Medical Ltd

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