The Alpha-1 Alliance has become a member of Rare Disease UK (RDUK). RDUK is the national alliance for people with rare diseases and their supporters. RDUK’s objective is to campaign for high quality services, treatment and support for patients with a rare disease.
RDUK was involved in the development of the National Rare Disease Strategy, which was launched by Earl Howe, Parliamentary Under-Secretary of State for Quality, in November last year.
The strategy sets out a plan for all four UK nations for improving the care and support provided to patients with a rare disease such as Alpha-1, including their families and carers.
The Alpha-1 Alliance is looking forward to working closely together with RDUK in the coming months.
Source: Alpha-1 Alliance 21/01/2014