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email forum - by joining the group e-mail forum you will be in contact with Alpha patients, their families, carers and friends living throughout the UK and overseas. We are a friendly group, and between us we have a wealth of knowledge and experience to share. There is always someone to help with any worries or queries you might have.

Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials

New Report! 

Our Trustee, Dr Sandra Nestler-Parr is a co author on this report published on 14th July 2017
Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials: An ISPOR COA Emerging Good Practices Task Force Report

http://www.sciencedirect.com/science/article/pii/S1098301517302644

Thank You!

 
 

 
 

 
 
       

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