Alpha-1 UK is a not for profit organisation founded in 1997 by those diagnosed with the genetic condition Alpha-1 Antitrypsin Deficiency dedicated to help, advise and support fellow sufferers, their families, carers and friends.
We are a registered Charity in England and Wales (1146330) Scotland (SC043177)
Mission Statement
- To provide support and education for patients, families, carers and friends who are affected directly or indirectly by Alpha-1 Antitrypsin Deficiency.
- To grow a social network for patients, by providing discussion groups focusing on how better to cope with their condition, aiming towards improving quality of life.
- To advance education, understanding and awareness of the condition, in particular among medical professionals, including information relating to genetic implications, treatment, and lifestyle choices.
- To support research and campaign for better access to treatment for Alpha-1 patients.