Alpha-1 UK
Mereo Alvelestat Study
Alpha-1 UK Support Group & Alpha-1 Awareness are very pleased to announce exciting news about a new drug trial for […]
Read article…Keith Pollard
Keith Pollard is kindly donating the net proceeds of his book to the Alpha-1 UK Support in memory of his […]
Read article…Mark Pawsey Press Release
Mark Pawsey MP raises awareness of rare illness in Parliament Mark led the first ever parliamentary debate on Alpha-1 Antitrypsin Deficiency […]
Read article…Westminster Hall Debate
Dear Alpha-1 patients in the UK, WE NEED YOUR SUPPORT! URGENTLY! We are delighted to inform you that, further to […]
Read article…Clinical trial update – 19th October 2018
In light of very recent events, we would like to provide some important information about upcoming clinical trials in Alpha-1 […]
Read article…EU ALPHA-1 AWARENESS DAY | 25 APRIL 2018
EU ALPHA-1 AWARENESS DAY | 25 APRIL 2018 For the first time in history, the European Alpha-1 Community celebrates an […]
Read article…Clinical utility of alpha-1 proteinase inhibitor
Clinical utility of alpha-1 proteinase inhibitor… Clinical utility of alpha-1 proteinase inhibitor in the management of adult patients with severe […]
Read article…Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials
New Report! Our Trustee, Dr Sandra Nestler-Parr is a co author on this report published on 14th July 2017Patient-Reported Outcome […]
Read article…PARTY IN THE PARK CHILDREN’S DAY
PARTY IN THE PARK CHILDREN’S DAY Saturday 19th August 2017 Folly Farm, Kilgetty, Wales The Alpha-1 UK Support Group are holding our 2nd Party […]
Read article…An Open Letter to the Alpha-1 Community
This open letter is intended to give an update on the recent activities of the Alpha-1 UK Support Group on […]
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