News
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Meet Four Alphas From Around the World
The stories of John (from the United Kingdom), Jenni (from Australia), Hans (from Sweden) and Caroline (from Belgium) are unique, […]
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Nurses from Southend Hospital hiking Hadrian’s Wall
Four fabulous nurses from Southend Hospital will be hiking Hadrian’s Wall (84 miles in 6 days) in June raising funds […]
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Mum Celebrates Reaching Finals in National Mum and Dad Blog Awards
Lincoln Mum Emma Smith, member of the Alpha-1 UK Support Group, is celebrating after reaching the finals of the MAD […]
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Wife in Alpha-1 campaign bid – Lancashire Evening Post
A widow who lost her husband to a rare genetic disorder is campaigning for awareness of the illness to be […]
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Bobby’s Story
Hi, My name is Charlotte and I lost Stuart, my husband, to Alpha-1 Antitrypsin Deficiency in August 2009. He was […]
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Jemma, Evie and Family Front Page News Newquay Voice
A NEWQUAY mother has begun a fundraising mission to help raise both awareness and funds for a rare disease. Gemma Masters […]
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Lucky 7 Charity Day – Fundraising Event for Alpha-1
Alan Lyons and his wife Claire will be taking part in this charity fundraiser for Alpha-1 and other local charities […]
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Alpha-1 Alliance – Campaign Update
The Alpha-1 Alliance is campaigning for a highly specialised service within the NHS for patients with severe Alpha-1 antitrypsin deficiency. […]
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Squeezy’s Story
For the past seven years we have battled to find out what Evie has wrong with her, we have finally […]
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Mum Tells of Battle to Find Treatment for Daughter
Pirate FM has learnt that a Newquay schoolgirl has spent her whole life in and out of hospital because of […]
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