We are pleased to announce that the Alpha-1 Alliance has now launched its new website. The website will provide you with information about the Alliance’s campaign for better Alpha-1 services and will also keep you up-to-date on the progress of the Alliance’s activities and events. Please visit: www.alpha-1-alliance.org.uk to view the website.
The Alpha-1 Alliance will be holding an event in Parliament in December to raise awareness with MPs about the unmet medical need of Alpha-1 patients and to launch a policy report, which includes recommendations for better access to Alpha-1 services and therapies.
We want as many MPs as possible to attend the event and we need your help to make the event a success!
The new website of the Alliance includes a function which allows you to identity your MP and to send him / her a personalised letter inviting your MP to attend the Parliamentary event. You only have to follow 2 simple steps.
1. Click on “Email your MP” Icon above right and enter your postcode
2. Review the template letter and add your personal experience of living with Alpha-1 and click “Send Letter”
The MP will then respond to the Alpha-1 Alliance’s Secretariat to let the Alliance know whether or not he / she will be able to attend the event on your behalf.
We would be extremely grateful if you could support our campaign and send the letter to your MP using the steps above.
Thank you for your support!