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Alpha-1 UK Support Group

Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials

New Report! 

Our Trustee, Dr Sandra Nestler-Parr is a co author on this report published on 14th July 2017
Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials: An ISPOR COA Emerging Good Practices Task Force Report

http://www.sciencedirect.com/science/article/pii/S1098301517302644

Author Karen O'HaraPosted on 14 July 201711 June 2021

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  • Remembering Bev Burroughs – Alpha-1 UK Trustee (2011-2024) 26 September 2024
  • Coronavirus (COVID-19) 11th August 2022 11 August 2022
  • What is happening with clinical trials in the UK as we slowly emerge from COVID-19, and how can you continue to support clinical research into new treatment options? 15 July 2021
  • European Pathways of Care in AATD Study 23 June 2021
  • Annual Meeting Update 2020 21 September 2020
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