Alpha-1 Alliance – Campaign Update

E-PETITION PLEASE SIGN / Alpha-1 Alliance (UK) launches e-petition to the Department of Health calling on the Government to nationally commission a specialised service for Alpha-1 so that patients can get the vital treatment and support they need.

The Alpha-1 Alliance’s campaign for a nationally commissioned specialised service for Alpha-1 antitrypsin deficiency, including access to augmentation therapy, is now well under way. The Alpha-1 Alliance brings together key Alpha-1 patient groups and clinicians to campaign for better services and treatment for Alpha-1 patients. The Alliance includes the Alpha-1 UK Support Group, Alpha-1 Awareness UK and Alpha-1 Advocacy and Action and is chaired by Dr Ravi Mahadeva, representing the clinical community.

The Alliance is in the process of securing meetings with key officials at the Department of Health as well as meeting with Members of Parliament to raise awareness of the needs of Alpha-1 patients. We’ve also just launched an online petition to the Department of Health calling on the Government to nationally commission a specialised service for Alpha-1 so that patients can get the vital treatment and support they need. It’s really important that we get as many signatures as possible to demonstrate the strength of feeling about the need for specialised Alpha-1 services and we need your help to make this happen.

Please show your support for the campaign by signing our e-petition, then spread the word by forwarding the petition to friends, family and work colleagues. Don’t forget to post the petition on Facebook and Twitter too, if you use them. We currently need to reach 5,000 signatures in order to make it into the top 10 petitions to the Department of Health, and if we can get 100,000 signatures the petition has the chance to be debated in Parliament.

You have to be a British Citizen or normally live in the UK in order to be able to sign the petition. So, British Citizens living abroad would be able to sign the petition and it would count (which is why the petition provides a ‘Country’ drop down menu).

To sign Petition>>>> Click Here

5th October 2012