A1AD Mentioned in House of Commons

Alpha-1 Antitrypsin Deficiency (A1AD) has been mentioned in the House of Commons, by Mark Pawsey, Conservative MP for Rugby. His question came as part of the “Business Questions to the Leader of the House” 6th December 2012.

Official transcript issued by Hansard 6th December 2012:-

Mark Pawsey (Rugby) (Con): I recently met my constituent, Stephen Leadbetter, who has suffered from lung problems since he was 14. He is now 22, and has recently been diagnosed as having alpha-1 antitrypsin deficiency. Stephen believes that if he had been diagnosed earlier, his health would not now be declining so rapidly. May we have a debate about raising awareness of this and similar conditions?

Mr Lansley: It is important that the Department of Health should continue to support research and development into rare genetic diseases, and we have protected the research and development budget in order to do so. We consulted on a rare disease plan, and published a summary of the consultation responses last month. Work is on track to produce a UK rare diseases plan by the end of 2013, which could help my hon. Friend’s constituent and many others.

The exchange between MP’s can be viewed at the Parliament TV Web Player minute marker 11:16 46 am:-

7th December 2012