Hi, My name is Charlotte and I lost Stuart, my husband, to Alpha-1 Antitrypsin Deficiency in August 2009. He was 36 when he died. He was diagnosed 2 1/2 years earlier. Up until his diagnosis he had lived a happy and healthy life although he was very ill shortly after he was born. His illness was painful, stressful, confused and his treatment extremely poorly managed. Earlier diagnosis could have prevented his death or at least prolonged his life. Stuart was ignored by doctors, letters were lost and he had to ‘project manage’ his illness himself. Stuart leaves behind two sons, they were 3 and 1 when he died. Our eldest son, Bobby, is now 6.
Read his story as he remembers what happened to his daddy and please sign the e-petition.