A widow who lost her husband to a rare genetic disorder is campaigning for awareness of the illness to be raised. Charlotte Goode, 37, from Clayton-le-Woods, near Chorley, lost her husband Stuart to Alpha-1 Antitrypsin Deficiency in August 2009. Now, the mum-of-two, is urging people to sign a petition calling for the establishment of a specialised service for Alpha-1.
The online petition has been launched by the Alpha Alliance and Charlotte is backing it following her family’s experience.